You’ve landed here because you saw one of our Walk4NF shirts! We’re so glad you’re curious. This walk helps us support people with neurofibromatosis (NF) and schwannomatosis. Your tax-deductible donations help NF Midwest provide support, education, empowerment programs, clinics, research, and more to our community.
What You Should Know About NF
Neurofibromatosis (NF) and schwannomatosis (SWN) are complex genetic disorders that cause tumors to grow on nerves throughout the body. The complications vary greatly from person to person and can change over time. Here are a few key things to know:
- NF and schwannomatosis are tumor disorders, but they also cause non-tumor-related issues.
- They are dominant genetic disorders, meaning someone with the condition has about a 50% chance of passing it to their children.
- About half of the people with these disorders did not inherit them; they are the result of a new or “spontaneous” mutation.
- These conditions affect all races, ethnicities, and genders equally.
- NF and schwannomatosis affect approximately one in 2,000 people.
Meet an NF Fighter
My Name is Audrey!
Hi! My name is Audrey, and I am 5 years old. By the time I was six months old, I had eight cafe au lait spots. By the time I was 18-months old, I had almost 50 of them. This is how my doctors knew I had NF type 1. When I was three, my doctors discovered I had a seizure disorder and a few months later, that I had a tumor called an optic pathway glioma on my left optic nerve and a neurofibroma (tumor) along my spine. I have just a few of the complications that NF1 can cause.
Thank You to Our 2026 Walk4NF Sponsors
Our Walk4NF events wouldn’t be possible without the incredible support of our sponsors. Please take a moment to check them out!
Naperville
Providence Bank
Triggi Construction
Fasco Fasteners
True Group Inc.
Madison
Be the First!
Columbia
Lamar Advertising
Indianapolis
Be the First!
Talk to Ted About Becoming a Sponsor or Learn More Here
