Meet Our Sponsors and Learn about NF and Schwannomatosis

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Please click the logos to visit the websites of our sponsors. Become a sponsor HERE.

NAPERVILLE SPONSORS

Providence Bank and Trust

Triggi Construction

Fasco Fasteners

MADISON SPONSORS

Frontida Management Group

COLUMBIA SPONSORS

Lamar Advertising

INDIANAPOLIS SPONSORS

Be the First!

Neurofibromatosis (NF) and Schwannomatosis (SCHW) disorders are very complex. The complications vary greatly from person to person and change and become more problematic as people age. Here are just a FEW things you should know.

NF/SCHW are tumor disorders, however they do cause other issues that are non-tumor related.
NF/SCHW are genetic dominant genetic disorders and people who have it usually have around a 50% chance of passing it on to their children.
They are not recessive. If you have it, you have it – though a person maybe mildly affected.
Approximately 50% of people with these disorders DID NOT inherit it. That just confused your mind, didn’t it? This is because “mutations” in a gene can occur very early in development so that a newborn now has the disorder.
These disorders affect all races, ethnicities, genders equally and because of that crazy “mutation” thing above, anyone can be born with NF or SCHW.
Though considered rare disorders (together they affect approx. one in 2,500) there is a good change you know someone with NF or SCHW.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

Thank you for stopping by to learn about the disorders of neurofibromatosis (NF) and schwannomatosis (SWN). This includes NF type 1, NF type 2, and schwannomatosis.

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