2023 iNFo Fair
In-Person Once Again! We’re So Much Better Together! A day of education for families and individuals affected by neurofibromatosis, a…
Read MoreIn-Person Once Again! We’re So Much Better Together! A day of education for families and individuals affected by neurofibromatosis, a…
Read MoreWalk4NF Indianapolis Details Get ready for the annual Indianapolis Walk4NF! Plus, NF Midwest is celebrating over 40 years as a…
Read MoreThe captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read MoreParents Group meeting for parents of kids with NF1, NF2, or Schwannomatosis. Please register once to attend all future meetings….
Read MoreBetween 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
Read MoreJanuary 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
Read MoreJoin us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
Read MoreI was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
Read MoreWith a few key words and the push of the enter key you can search pretty much any topic you…
Read MoreCamp New Friends is a neurofibromatosis specific camp for ages 7-17. Camp New Friends offers seven days and six nights…
Read More
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.