42 Years of Care and Ensuring No One Fights Alone!

NF Midwest News

Check out past blogs and news!

NF Midwest News/Blog

be iNFormed about Learning in NF1

James Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series) Neurofibromatosis Midwest is excited to start a new…

Read More

Check Out Our New Website!

Check out our new website! We have been working on this for several months after dreaming about it for several…

Read More

NF Registry

If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…

Read More

NF1 Washington University Registry

The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…

Read More

NF2 Clinical Trial

In 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…

Read More

Plexiform Drug Trial

If you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…

Read More

Get the Latest NF News & Updates

Sign up to be notified of new posts to our website.


Visit Us
Follow Me
Tweet
Share