be iNFormed about Learning in NF1
James Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series) Neurofibromatosis Midwest is excited to start a new…
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James Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series) Neurofibromatosis Midwest is excited to start a new…
Read MoreCheck out our new website! We have been working on this for several months after dreaming about it for several…
Read MoreA new edition (3rd) of the booklet Understanding Neurofibromatosis is now available online for free or by mail for $5.00. It is…
Read MoreWhat’s considered to be a long time at one job? At what point is your dedication respected and honored? What…
Read MoreIf you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
Read MoreIndiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1…
Read MoreThe Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
Read MoreIn 2012 House Research Institute will sponsor a three-year, Phase II clinical trial, evaluating the efficacy of the drug RAD001…
Read MoreThe University of Wisconsin Milwaukee Dept. of Psychology (Bonnie Klein-Tasman, Ph.D.) is collaborating with the University of Chicago NF Program…
Read MoreIf you have Type 1 Neurofibromatosis with Plexiform Neurofibromas you may be interested in NF1 Plexiform treatment studies for children…
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