Smiles for Sarah
The annual Smiles for Sarah benfit walk for neurofibromatosis is on October 21st in Oak Forest, IL. This is the…
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The annual Smiles for Sarah benfit walk for neurofibromatosis is on October 21st in Oak Forest, IL. This is the…
Read MoreThis weekend we have 7 caring and energetic people running for neurofibromatosis and the NF Network organizations of NF Midwest…
Read MoreThis one covers Comprehensive Neuropsychological Evaluations for Children with NF1. Thank you to Jill Isenberg, Ph.D., ABPP from the St. Louis…
Read MoreUse the NF1 Information for Teachers (NF Midwest be iNFormed Series) article to provide to your child’s teacher and school. This article is…
Read MoreWant to learn more about neurofibromatosis? Looking to meet others with NF? Hoping for a cure? Join Neurofibromatosis Midwest; noted…
Read MoreNeurofibromatosis Midwest & Neurofibromatosis Northeast Unite to Fund NF Research Neurofibromatosis Northeast and Neurofibromatosis Midwest are pleased to announce that…
Read MoreThere are many ways to stay on top of all neurofibromatosis news and Neurofibromatosis Midwest. Twitter text updates – One…
Read MoreBy Amanda Bergner, MS, CGC (NF Midwest be iNFormed Series) People who themselves have been diagnosed with NF1, NF2 and…
Read MoreBy Dr. Robert Listernick (NF Midwest be iNFormed Series) Optic pathway gliomas are benign (low grade) pilocytic tumors. They may…
Read MoreA consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…
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