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NF Midwest News

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NF Midwest News/Blog

Smiles for Sarah

The annual Smiles for Sarah benfit walk for neurofibromatosis is on October 21st in Oak Forest, IL.  This is the…

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Chicago Marathoners Run4NF!

This weekend we have 7 caring and energetic people running for neurofibromatosis and the NF Network organizations of NF Midwest…

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be iNFormed for Teachers

Use the NF1 Information for Teachers (NF Midwest be iNFormed Series) article to provide to your child’s teacher and school. This article is…

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2012 NF Midwest Symposium

Want to learn more about neurofibromatosis? Looking to meet others with NF? Hoping for a cure? Join Neurofibromatosis Midwest; noted…

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be iNFormed about Optic Gliomas

By Dr. Robert Listernick (NF Midwest be iNFormed Series) Optic pathway gliomas are benign (low grade) pilocytic tumors. They may…

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Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

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