Can You Hear Us – New NF2 Initiative
Forty-four extraordinary individuals from around the world have united to share their journeys with Neurofibromatosis Type 2 (NF2). NF2: Our Journeys is…
Read MoreCheck out past blogs and news!
Forty-four extraordinary individuals from around the world have united to share their journeys with Neurofibromatosis Type 2 (NF2). NF2: Our Journeys is…
Read MoreCheck out a recording of the webinar on When to Worry About NF1 that was presented by the Neurofibromatosis Network on…
Read MorePain in NF1 One of most common challenges for individuals with NF1 is living with chronic pain. By definition, chronic…
Read MoreDear Neurofibromatosis Supporter, It’s been eighteen years since I was sitting alone at my home in Singapore, talking by phone…
Read MoreSee what it’s all about. Watch video of the 2012 Great Steps 4NF walk in Naperville, IL. Started in 2001,…
Read MoreIn March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the author of “The Hero in Me,” which…
Read MoreREGISTER NOW Join the NF community and participate in a Great Steps for Neurofibromatosis walk. The Great Steps 4NF Walks…
Read MoreGenetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for a study entitled:…
Read MoreCall for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…
Read MoreA neurofibromatosis type 2 researcher is looking for people who have been diagnosed with NF2 and have hearing loss to…
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