Survey for Parents of Children with NF1
Dr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
Read MoreCheck out past blogs and news!
Dr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
Read MoreNF Midwest has previously funded studies by Dr. Klein-Tasman’s team that has resulted in valuable information on the cognitive abilities…
Read MoreAt our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
Read MoreEvery year NF Midwest funds many kids with neurofibromatosis to go to Camp New Friends in West Virginia. We are…
Read MoreCrystal Reith has a great strategy for raising NF awareness through the West Central Wisconsin NF Midwest group that…
Read MoreIf you have a child with neurofibromatosis, consider sending them to Camp New Friends. Now is the time to sign…
Read MoreWe are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…
Read MoreWhen we learned from Jamie Dornbush how many, including her, in her extended family were recently found to have neurofibromatosis…
Read MoreWritten for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreDear Friend, At this time of the year, we need your reinforcement with a small donation of $10, $25, $50,…
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