Participants Needed for NF1 Study on Coping with Pain
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
Read MoreCheck out past blogs and news!
Coping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
Read MoreOur fiscal year is coming to an end on September 30. Your generosity in our fiscal year 2015 dictates what programs…
Read MoreOur 25th Annual Neurofibromatosis Symposium is scheduled for Saturday, October 24th and new this year, it will include an iNFo…
Read MoreSchool is starting! If you have a child with neurofibromatosis type 1 you might find our be iNFormed article NF1 Information for Teachers helpful….
Read MoreIn April of 2013, NF Mid-Atlantic presented a webinar on the Top 10 Tips for Success in the Special Education…
Read MoreOn July 29, 2015 NF Network hosted a webinar on hearing preservation and rehabilitation in Neurofibromatosis Type 2. The speaker was Derald E. Brackmann,…
Read MoreNeurofibromatosis (NF) Midwest is proud to announce the first recipients of their new academic scholarship for adults with neurofibromatosis! Austin…
Read MoreApttus (San Mateo, CA) is the presenting sponsor for NF Midwest’s 17th Annual Take a Swing at NF Golf Benefit to…
Read MoreThis year eleven campers and counselors from the NF Midwest region attended Camp New Friends in West Virginia. NF Midwest…
Read MoreWe frequently get asked about how to tell a child they have neurofibromatosis…or whether to tell them at all. Obviously,…
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