We Need Your 2016 Personal Stories for Congress
On February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreCheck out past blogs and news!
On February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreJoin our Monthly Giving Circle and for a limited time you may receive a FREE NF Midwest Neurofibromatosis Fighter T-Shirt!…
Read MoreBig NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails,…
Read MoreThursday and Friday, December 3rd and 4th, were just amazing days for me, NF Midwest and the entire NF Community….
Read MoreThanks so much for everything. A part of me wishes I had still never heard of NF, but since it’s…
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreNF Midwest is very excited to have Rick Guidotti of Positive Exposure speaking at our symposium Saturday, October 24th. Rick is an…
Read MoreIf you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always…
Read MoreAt NF Midwest we are frequently asked what the “awareness color” is for neurofibromatosis for use in ribbons, etc. So…
Read MoreThe House of Representatives is in budget negotiations and we need people to contact their Congressman NOW and ask them to…
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