Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreCheck out past blogs and news!
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreWe’re thrilled to announce the launch of our virtual open office hours! This is your chance to connect with me…
Read MoreA 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and…
Read MoreFebruary 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read MoreHere is your sign to start the new year working on your goal of continuing post high school education. The…
Read MoreWalk4NF Virtual Challenge Details Get ready for this year’s Virtual Challenge! Plus, NF Midwest is celebrating over 42 years as…
Read MoreDuring the week of February 4-6th NF Midwest along with other NF organizations, advocates, caregivers and those with neurofibromatosis (NF)…
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