Virtual Open Office Hours
Looking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreLooking for a friendly face and a listening ear? Do you have questions about neurofibromatosis, but aren’t sure where to…
Read MoreThis Year’s Focus Will Be On Research! Join us for an all-day iNFo Fair in Naperville, Illinois, on Saturday, October…
Read MoreThere’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreWe’re thrilled to announce the launch of our virtual open office hours! This is your chance to connect with me…
Read MoreA 7 day, 6 night residential summer camp for children and teens living with Neurofibromatosis Type 1, Type 2 and…
Read MoreFebruary 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read More
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.