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NF Midwest News/Blog

Spinal Neurofibromas in NF1

The following is a blog by Dr. Luiz Rodrigues . Originally posted in Portuguese on July 3 2017. Additions and…

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Wear the Word!

Join Rory in raising awareness and help the world recognize the neurofibromatosis cause by WEARING THE WORD! She’s the one…

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Why We Walk in Naperville

Our walk in Naperville is just two days away on Saturday, June 3rd; today is Throwback Thursday; and NF Awareness…

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NF1 Pain Management Questionnaire

Dr. Frank Buono with Yale University School of Medicine, in the Department in Psychiatry is looking for volunteers interested in…

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