Jenny – A Face of NF
I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…
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I was diagnosed with neurofibromatosis type 1 (NF1) when I was 16 years old. As a child in school, I suffered from…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
Read MoreIf you’re in the NF Midwest service area of Illinois, Indiana, Iowa, Kentucky, Missouri (east half), or Wisconsin and are…
Read MoreGreat news! A new, detailed clinical practice guideline has been made available on the care of adults with neurofibromatosis type…
Read MoreHere’s an event you can participate in from your couch and possibly win a two year lease on a 2018…
Read MoreErin Carter, whose 4 year old son, Cash, was diagnosed with NF in 2015, is determined to raise awareness and…
Read MoreHappiness is yelling BINGO! The last game night was such a success that the next one has already been planned….
Read MoreThe Evansville Indiana group will be holding an informal Meet4NF gathering to provide support, share resources and meet others with…
Read MoreThis month the Kentucky NF Support group meeting will be held Saturday, April 21st, from 1-5pm in Mount Sterling. One of…
Read MoreAre you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years? The MIND…
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