iNFo Fair 2018: Living with NF1
This year we’re excited to have one of our NF Midwest clinic directors presenting for the first time at NF…
Read MoreCheck out past blogs and news!
This year we’re excited to have one of our NF Midwest clinic directors presenting for the first time at NF…
Read MoreNF Midwest is very excited to add a topic to our October 20th Sympoisum & iNFo Fair that has been requested…
Read MoreFor adults with neurofibromatosis (NF) type 1, finding good care and doctors who are knowledgeable about the many complications and variations…
Read MoreWe’re excited to tell you about another one of our presenters for our October 20th NF Midwest Symposium and iNFo…
Read MoreWe almost have all our presenters set for our October 20th NF Midwest Symposium and iNFo Fair. To see the…
Read MoreSam, 33 I was diagnosed with neurofibromatosis type 1 (NF1) while being treated for scoliosis when I was 4 years…
Read MoreNeurofibromatosis Midwest is excited to award $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the fourth…
Read MorePlease join us for an afternoon of family, new friends, food, fun, raffles, competition and a great cause! Whether you’re…
Read MoreLevi, 8 This is our beautiful son, Levi Howard. He was diagnosed in March of 2017 with NF1 when he…
Read MoreWe inherited NF1 from our mom, Shirley, who passed away from breast cancer at the age of 53. She fought…
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