Smiles for Sarah White Sox Day!
Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children’s…
Read MoreJune 30th, 2019
Join the Panozzo Family for a Day at the Ball field to benefit the Ann and Robert H Lurie Children’s…
Read MorePlease join the Kentucky NF Support Group for an afternoon of fun, food, and friendship at the Thomas family farm…
Read MoreIf you have a child with neurofibromatosis, please consider sending them to Camp New Friends. Now is the time to…
Read MoreProtect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research….
Read MoreThe Kentucky NF Midwest group will be holding their monthly NF Support group meeting Saturday, March 16th, from 10 am…
Read MoreMay is National Neurofibromatosis (NF) Awareness Month (and in particular, May 17th is World NF Awareness Day), so the Fort…
Read MoreAt our October 20th, 2018 symposium, we had the pleasure of learning strategies and skills to improve resiliency and overall…
Read MoreAt the October 2018 NF Midwest Symposium and iNFo Fair, Jackie Diels, OT, a leading authority on facial neuromuscular retraining…
Read MoreOur daughter Janna was diagnosed with neurofibromatosis type 1 when she was five months old. Doctors tell us that it…
Read MoreBecause the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…
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