Rory – A Face of NF
Aurorah (Rory), now age 9, was diagnosed with neurofibromatosis type 1 shortly after her sixth birthday. She was born with…
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Aurorah (Rory), now age 9, was diagnosed with neurofibromatosis type 1 shortly after her sixth birthday. She was born with…
Read MoreOur three-year-old son, Benjamin, was diagnosed with Neurofibromatosis Type 1 one year ago due to multiple cafe-au-lait spots (birthmarks) and…
Read MoreThis is my son Joel. He was born with neurofibromatosis type 1. Neurofibromatosis (NF) is a genetic disorder of the…
Read MoreHi! My name is Jackson and I’m 10 years old!! I was diagnosed with NF1 at 18 months old. It’s…
Read MoreWhen Eli was three years old, he was diagnosed with neurofibromatosis type 1, something we had never heard of before….
Read MoreWyatt was diagnosed with NF type 1 when he was 2 years old. He will be turning 13 years old…
Read MoreMay is NF Awareness month. This year, to grow awareness, we are going to be sharing stories of how this…
Read MoreKatherine (or Katy) is 5 years old and was diagnosed with NF1 in October of 2018. Our first sign of…
Read MoreNoah was 7 months old when he was diagnosed with NF1. He is almost 3 years old now. Noah has cafe…
Read MoreCheck out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…
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