Jackson – A Face of NF
Hi! My name is Jackson and I’m 10 years old!! I was diagnosed with NF1 at 18 months old. It’s…
Read MoreCheck out past blogs and news!
Hi! My name is Jackson and I’m 10 years old!! I was diagnosed with NF1 at 18 months old. It’s…
Read MoreWhen Eli was three years old, he was diagnosed with neurofibromatosis type 1, something we had never heard of before….
Read MoreWyatt was diagnosed with NF type 1 when he was 2 years old. He will be turning 13 years old…
Read MoreMay is NF Awareness month. This year, to grow awareness, we are going to be sharing stories of how this…
Read MoreKatherine (or Katy) is 5 years old and was diagnosed with NF1 in October of 2018. Our first sign of…
Read MoreNoah was 7 months old when he was diagnosed with NF1. He is almost 3 years old now. Noah has cafe…
Read MoreCheck out our Spring 2019 NF Midwest Newsletter! The highlights of this issue include… Page 1 Information on the new…
Read MoreHere’s an event you can participate in from your couch and possibly win a two year lease on a 2019…
Read MoreThe American Academy of Pediatrics has published an updated clinical guideline on the Health Supervision for Children With Neurofibromatosis Type…
Read MoreAmazing volunteers in Fort Wayne are doing it 4NF and have put together a special family night for people in…
Read More
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.