Jean – A Face of NF
I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
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I have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
Read MoreGrowing up I always knew I was different. I had spots all over my body. I actually thought for…
Read MoreI have NF type 1. For the most part, my symptoms have been mild, but the most significant challenges I’ve…
Read MoreI am 64 years old with no prior neurofibromatosis family history and none of my 6 siblings have NF, making…
Read MoreAna is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was…
Read MoreMaverick is the first in his family to be diagnosed with NF1. He started showing symptoms at 2 months old….
Read MoreHi I’m Karissa, I’m 27 and I have NF1. My story may be a little long, but sometimes that’s the…
Read MoreHi, my name is Jean. My son, Collin, was diagnosed with NF1 at the age of 1. He was a…
Read MoreMy little guy’s name is Conor and he is 1 year-old and has been diagnosed with NF Type 1. Conor’s…
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