RJ – A Face of NF
We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
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We had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
Read MoreMy name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
Read MoreI was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
Read MoreI am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
Read MoreI have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
Read MoreHi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
Read MoreMy name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
Read MoreI have NF1. I was born 1970 as an identical twin. My mom had two boys before us and…
Read MoreEver feel like you don’t get the chance to meet other NF friends and families at Great Steps? Let’s change…
Read MoreGrowing up I always knew I was different. I had spots all over my body. I actually thought for…
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