Shad – A Face of NF
I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
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I joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
Read MoreMy sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
Read MoreMy STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
Read MoreWe had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
Read MoreMy name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
Read MoreI was diagnosed with neurofibromatosis type one at birth. It was caused by spontaneous mutation. I was born with glaucoma…
Read MoreI am 67 years old and I have NF2. When I was 45, I had my first acoustic neuroma (now…
Read MoreI have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…
Read MoreHi! I was diagnosed with neurofibromatosis type 1 when I was 3 years old. I am the only one in…
Read MoreMy name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…
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