2018 Year in Review
Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…
Read MoreCheck out past blogs and news!
Our 2018 financial statement is complete and we’ve taken time to look back at the year in review! It was…
Read MoreFor many newly diagnosed NF2 patients the first question that usually comes to mind is “Am I going to lose…
Read MoreFrank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
Read MoreWe are excited to have our inaugural golf fundraising event hosted by Ravinia Green Country Club on Monday, September 9,…
Read MoreMassachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…
Read MoreMy name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
Read MoreNF Collective Launches New Website to Connect NF Patients with Doctors The NF Collective, a group of organizations dedicated to…
Read MoreI joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
Read MoreMy sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
Read MoreMy STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
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