Another $15 Million for Neurofibromatosis
Great News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
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Great News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
Read MoreThe Medical College of Wisconsin is looking for people with neurofibromatosis type 1 ages 14 to 30 to participate in…
Read MoreIn 2017, I became involved in a clinical research trial through Medical College of Wisconsin for benign cutaneous neurofibromas. Being…
Read MoreSera has a tumor that runs the length of her arm, all the way from her hand up to her…
Read MoreGiving Tuesday is December 3rd and we invite you to join us in coming together with your family, friends, co-workers,…
Read MoreAt NF Midwest’s Symposium and iNFo Fair last Saturday, November 9th, we were very fortunate to have Dr. Lu Le…
Read MoreCaregivers of children with NF1: Please, help us continue to make strides by participating in research! With funding from NF…
Read MoreBig news just hit…though it has been expected! Many of us have been following the success of the drug selumetinib…
Read MoreHave you ever wondered what drives people to accomplish great things in their line of work? Steve Jobs once said…
Read MoreWhen I started as the executive director of NF Midwest in 2008 I had already served on the NF Midwest…
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