Volunteer Spotlight : Tim E
Meet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…
Read MoreCheck out past blogs and news!
Meet Tim and Sue! Tim is one of our amazing, out of this world, extraordinary volunteers who heads up the…
Read MoreTHIS STUDY HAS BEEN CLOSED BY THE RESEARCHERS. THANK YOU ALL WHO PARTICIPATED!!!! Researchers are looking for adults with neurofibromatosis…
Read MoreDue to COVID our physical walks are cancelled but we’re still following our walk motto that “No One Fights Alone…
Read MoreUPDATE: PLEASE BE ADVISED OUR CUT-OFF FOR REGISTRATIONS IS JULY 6!!!! This date is the last date for registration information…
Read MoreThe 2020 event has ended, but we do this every year! Visit our Birdies for Charity Pledge form for more…
Read MoreWe love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days! Kara, Maverick’s…
Read MoreKOSELUGO FAQS In April 2020 the U.S. Food and Drug Administration (FDA) approved KOSELUGOTM (selumetinib) for use in children over…
Read MoreWe want you to know that we are working from home to do anything we can to continue to support you…
Read MoreThe hearts and thoughts of the NF Midwest staff, board, and community are with people all over the world who…
Read MoreBelow are answers to many of the frequently asked questions regarding the COVID stimulus packet. We hope this helps our…
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