Registration is now open for Camp New Friends July 16- July 22, 2023
Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreCheck out past blogs and news!
Started in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreFebruary 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreInsurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read MoreOptic Pathway Gliomas are often referred to as OPG and may affect those with neurofibromatosis type1 (NF1). In most cases…
Read More$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill…
Read MoreWe’re putting 2020 through 2022 in the review mirror and looking forward to an amazing 2023. Honestly, it’s been a…
Read MoreWalk4NF Columbia Details Get ready for the annual Columbia Walk4NF! Plus, NF Midwest is celebrating over 40 years as a…
Read MoreNeurofibromatosis Midwest is very excited to have Sarah Selogic join our team as our Care and Outreach Coordinator. Sarah is…
Read More
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.