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iNFo Fair Recordings Posted
Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
Read MoreCheck out past blogs and news!
Recordings from the 2024 iNFo Fair are now posted on NF Midwest’s YouTube channel youtube.com/@nfmidwest. There may still be more…
Read MoreThe NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…
Read MoreCheck out NF Midwest’s December update. If you are connected with us, you should have received this in an email!…
Read MoreIf you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…
Read MorePress Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
Read MoreNF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…
Read MoreJoin us to learn about current research on how best to treat pain for people with non-NF2 related schwannomatosis. We’ll…
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read MoreManaging NF1 PN can be complex! Hear from a Patient Education Manager to learn more about neurofibromatosis type 1 with…
Read MoreLearn more about Camp NF (formerly Camp New Friends) at an online meeting on Tuesday, January 28th. Camp NF is…
Read MoreRTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…
Read MoreOnce again, NF Midwest advocates will be in Washington, DC, to urge our Senators and Representatives to continue supporting research…
Read MoreNF Midwest recently concluded its 2024 Champions of the Fall fundraising campaign, a dedicated effort to support individuals affected by…
Read MoreNeurofibromatosis Midwest (NF Midwest) is excited to announce the 2025 Walk4NF events, dedicated to raising awareness and funds for individuals…
Read MoreWalk4NF Naperville Details Get ready for the 23rd Naperville Walk4NF – the grandaddy of them all supporting those affected by…
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