NF refers to the genetic conditions of neurofibromatosis and all schwannomatosis.
The term “NF” refers to a group of complex, often devastating genetic conditions with the primary feature of causing tumors. However, depending on the specific NF disorder there may be other complications. NF affects everyone differently. They are genetic conditions that generally have a 50% chance of being passed on to offspring, however, people may be born with NF without inheriting it. Together NF affects approximately 1 in 2,000 people or 4 million people worldwide, it appears equally in all races, ethnic groups, and both sexes.
NF includes neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2, or NF2.
If you or a loved one has NF, it is vital to be armed with a strong knowledge and understanding about the disorder and to see an NF doctor who is not only knowledgeable but also very experienced in the treatment of NF.
On this website and on links that take you beyond, we hope you find some of the answers you are looking for.
National Institute of Health Fact Sheet ¿Qué son las neurofibromatosis?
This booklet may be downloaded for FREE. It may also be mailed FREE to any NF family or individual who is new to NF Midwest and resides in the NF Midwest service region of Illinois, Wisconsin, Indiana, Kentucky, Iowa or the east half of Missouri. If you are not in these regions you may contact the NF Network.
NF iNFo Fair Recording
| 2021
By Miriam Bornhorst, MD
Overview of the types of NF.
Neurofibromatosis (NF) Center, Washington University
Cleveland Clinic
| 2008
By Dr. David Rothner
Harbor Laboratory
Your Genes, Your Health; Cold Spring
National Humane Genome Research Institute | 2016
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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