Neurofibromatosis Type 1 is caused by a mutation in a gene on chromosome 17. It affects approximately one in 3,000 people.
Children's Tumor Foundation | 2023
Children's Tumor Foundation | 2024
Children's Tumor Foundation | 2023
American College of Medical Genetics and Genomics | 2018
The NF Collective
| 2020
Includes conversations with young adults who have NF
The NF Collective
| 2021
By Members of the NF Collective
Children's Tumor Foundation | 2023
www.amanf.org.br
| 2017
By Dr. Luiz Rodrigues (translated by Dr. Mata-Machado
Tags: Cafe-au-lait, cafe aulait, birth marks
Children's Tumor Foundation | 2021
Children's Tumor Foundation | 2020
By NF Midwest
Children's Tumor Foundation | 2020
Children's Tumor Foundation | 2023
National Cancer Institute
| 2021
By Sharon Reynolds
NF Midwest Posts
| 2021
By NF Midwest
Children's Tumor Foundation
| 2021
By Children's Tumor Foundation
Genetics in Medicine
| 2021
By Eric Legius, Ludwine Messiaen, Scott R. Plotkin
NF Midwest
NF Midwest
| 2012
By Cynthia Hingtgen, MD, PhD
What should you know? People with neurofibromatosis type 1 (NF1) can have many…
By Allison Goetsch, MS, CGC
NF Network
Webinar Recording The Neurofibromatosis Network presented this webinar on aging in neurofibromatosis type…
Nurse Practitioner
| 2005
By Leigh Hart, RN, CCRN, PhD
Elsevier
| 2006
By James Tonsgard, MD
Pediatrics, Official Journal of the American Academy of Pediatrics | 2009
NF Midwest
It can be difficult for general care physicians and even specialists to stay…
NF Midwest
| 2015
By Diana Haberkamp, reviewed by Eva Dombi, MD
NeurologyLife
| 2024
By Dr. Kaleb Yohay, NYU Langone Health
NF iNFo Fair Recording
| 2021
By Dr. Virginia Harrod
Tags: optic pathway, gliomas, brainstem, intraspinal
NF iNFo Fair Recording
| 2021
By Dr. Lu Le
Tags: fibromas, treatment, excision, laser, electrodessication
NF iNFo Fair Recording
| 2021
By Dr. AeRang Kim
Tags: treatments, trials, sarcoma, cancer
NF iNFo Fair Recording
| 2021
By Dr. Amy Armstrong
Tags: tumors, NF1, treatments, trials
NF iNFo Fair Recording
| 2021
By Dr. Steven Rhodes
Tags: NF1, plexiform
JCI Insight
| 2019
By Bahir H. Chamseddin, La’Nette Hernandez, Dezehree Solorzano, Juan Vega,1 and Lu Q. Le
Tags: tumors, skin, fibromas
Neuro-Oncology Advances
| 2019
By Bahir H. Chamseddin and Lu Q. Le
Tags: tumors, skin
Children's Tumor Foundation
| 2020
By Heather Radtke, MS, CGC, Children’s Tumor Foundation, Medical College of Wisconsin Tena Rosser, MD, Children’s Hospital of Los Angeles Nicole Ullrich, MD, PhD, Boston Children’s Hospital; Dana Farber Cancer Institute
NF Midwest
| 2018
By Robert Listernick, MD
CDMRP
A video released in January 2013 by the Congressionally Directed Medical Research Program…
NF Midwest
| 2016
By Multiple Contributors
Leading the Fight for Options in Treating Dermal Neurofibromas: NF Midwest gets new procedure codes…
NF Midwest
If you have cutaneous neurofibromas that are causing you any distress you CAN…
NF Midwest
| 2020
By James Tonsgard, MD
NF Clinic at Amita Health/St. Alexis.
| 2017
By Dr. Luiz Rodrigues, translated by Dr. Mata-Machado
The following is a blog by Dr. Luiz Rodrigues . Originally posted in…
NF Midwest
| 2015
By James Tonsgard, MD, University of Chicago
Tags: Tumors
Pediatrics, Official Journal of the American Academy of Pediatrics
| 2009
The Neurofibromatosis Network presented this webinar on optic gliomas in neurofibromatosis type 1…
NF Midwest
| 2020
By Robert Listernick, MD
NF Midwest
| 2020
By Andrea Gross, MD
Children's Tumor Foundation By Jessica M. Boehman
Children's Tumor Foundation | 2023
Children's Tumor Foundation | 2023
American Academy of Pediatrics | 2019
Children's Tumor Foundation | 2021
NF iNFo Fair Recording
| 2021
By Dr. Donald Basel
Tags: fibromas, nevus anemicus, juvenile xanthogranuloma, pruitis, itchiness, choroidal freckling, retinal, bones
Slides from 2021 NF iNFo Fair
| 2021
By Donald Basel, MD
Tags: Complications,
The NF Collective
| 2020
Includes conversations with young adults who have NF
The NF Collective
| 2021
By Members of the NF Collective
University of Alabama at Birmingham
| 2017
By Dr. Bruce Korf
NF Midwest Symposium
| 2014
By Dr. Parag Shah, Lurie Children’s Hospital
At our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children's…
NF Network
| 2013
In March 2013 NF Network hosted a webinar presented by Susan Fitzsimonds, the…
PACER's
American Academy of Pediatrics
| 2008
By Joseph H. Hersh, MD, and the Committee on Genetics
Children’s National Medical Center & Camp New Friends from the NF Network
| 2014
By Sandy Cushner-Weinstein, PT, LCSW-C
The Neurofibromatosis Network presented this webinar on social emotional development in neurofibromatosis in…
Center for Effective Parenting
NF Midwest
| 1998
By Helen Hand, PhD
University of Wisconsin-Milwaukee
| 2021
By Bonnie Klein-Tasman, PhD
NF iNFo Fair Recording
| 2021
By Bonnie Klein-Tasman, PhD
Tags: ADHD, LD
University of Wisconsin-Milwaukee
| 2021
By Bonnie Klein-Tasman, PhD
NF Midwest By Bonnie Klein-Tasman, Ph.D., & Christy Casnar, Ph.D.
NF Midwest Symposium
| 2015
By Tiffany Dell’Aquila, PSY.D
St. Louis Children’s Hospital
| 2012
By Jill Isenberg, Ph.D., ABPP
PhDinSpecialEducation.com
Our easy-to-teach, easy-to-learn curriculum makes handwriting mastery joyful for students and their teacher.
Brain training exercises.
The educators’ guide to learning disabilities and ADHD.
NF Mid-Atlantic
Recorded in December of 2012 by NF Mid-Atlantic, this webinar focuses on the different…
NF Mid-Atlantic
In April 2013 NF Mid-Atlantic hosted a webinar about the early signs of learning…
NF Network
In March 2012 NF Network, presented a webinar about school issues in neurofibromatosis…
NF Midwest
Use the NF1 Information for Teachers (NF Midwest be iNFormed Series) article to provide to…
Journal of Attention Disorders
| 2012
By Alexandra K. Templer, Jeffrey B. Titus and David H. Gutmann
NF Midwest
| 2012
By Drs. Scott Hunter and James Tonsgard, University of Chicago
BC Neurofibromatosis Foundation By Summarized by Genefo
Nine page summary of a guide
NF Midwest Symposium
| 2013
By Dr. Scott Hunter, University of Chicago
Frequently some children and adults with neurofibromatosis type 1 have problems with socialization…
Children’s National Medical Center & Camp New Friends from the NF Network
| 2014
By Sandy Cushner-Weinstein, PT, LCSW-C
The Neurofibromatosis Network presented this webinar on social emotional development in neurofibromatosis in…
Children's Tumor Foundation | 2024
U.S. National Library of Medicine
| 2007
By S Sharif, A Moran, S M Huson, R Iddenden, A Shenton, E Howard, D G R Evans
Johns Hopkins University
| 2012
By Amanda Bergner, MS CGC
People who themselves have been diagnosed with NF1, NF2 and schwannomatosis, or who…
NF Midwest
| 2021
By Nicole Sevison RN, Haluk Altiok MD
NF Clinic
| 2017
By Christopher Moertel, MD
NF Midwest By Nikolas Mata-Machado, MD, Loyola University
What Should You Know? PDF Version Seizures occur in people with Neurofibromatosis type…
NF Network
| 2014
By Dr. James Tonsgard, University of Chicago
The Neurofibromatosis Network presented this webinar on seizures in neurofibromatosis type 1 in…
NF Mid-Atlantic
| 2013
By Andrew Tyler Putnam, MD
In February 2013 NF Mid-Atlantic hosted a webinar on "Managing Pain in Neurofibromatosis". The…
National Cancer Institute, National Institutes of Health By Staci Martin Peron, PhD and Andrea Baldwin, CRNP
Pain in NF1 One of most common challenges for individuals with NF1 is…
Department of Communication Sciences and Disorders, California State University
| 2017
By Heather Thompson, PhD CCC-SLPt Professor
Department of Communication Sciences and Disorders, California State University, Sacramento By Kimberly Marrs, B.S., & Heather Thompson, Ph.D., CCC-SLP
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