42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

NF Midwest Dream Team

Wishing for a future CURE and better CARE now.

NF Midwest Dream Team

The Dream Team is for people who have a great interest in supporting the mission of NF Midwest. Dream Team members receive frequent emails regarding the organization needs and are invited to bi-monthly meetings to discuss the programs of NF Midwest and the overall needs of our community. We are looking for those committed to volunteering their time and skills in different ways to help make an impact.

There are jobs big and small and a niche for everyone who really wants to help, but we are looking for individuals who have the dedication to participate on a regular basis and who are able to respond to communications in a timely manner.

If this sounds like something you may want to participate in, please fill out the form below to express your level of interest, availability and what life and professional skills your could add to the team.

NF Midwest Dream Team Application/Questionnaire

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Name*

First Last

Email*

Phone Number*

City and State*

Preferred Method of Contact*

Phone

Availability*

Choose which timeframes you'd prefer to attend online Dream Team meetings. Choose all that apply.

Weekdays

Weeknights

Saturday Mornings

Saturday Afternoons

Sunday Mornings

Sunday Afternoons

VOLUNTEER INTERESTS & SKILLS

Please list what ways you'd like to volunteer with NF Midwest and any skills you can bring to the Dream Team.

Ways You'd Like to Be Involved

Select all that apply. (hold shift to select multiple)

Skills You Can Bring to the Team

You may have skills from hobbies or your career that could be useful for the Dream Team. Please share what skills you have that could be of use. ( i.e. bilingual, past volunteer experience, industry connections, grant writing experience, etc...)

Commitment*

Please estimate the time you're willing and able to commit to The Dream Team each month. Make your best guess using the dropdown below. This is only to gauge interest-level and availability.

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People Are Talking

Thanks to you and this organization, I see a day when this disease will be relegated to the “curable” section of the medical dictionary. Thanks to you and this organization, “someday” isn’t just an “someday” isn’t just an empty wish. It will happen.

- Gabriele

Find NF Care

Get the best care! Find an experienced NF doctor/clinic in the NF Midwest region.

Be iNFormed

Knowledge is power! Learn and understand as much as possible about neurofibromatosis.

Community Support

Don’t fight alone! Meet others in the NF community to learn and share experiences.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

NF Midwest Dream Team

NF Midwest Dream Team

NF Midwest Dream Team Application/Questionnaire

VOLUNTEER INTERESTS & SKILLS

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People Are Talking

Find NF Care

Be iNFormed

Community Support

Get the Latest NF News & Updates