42 Years of Care and Ensuring No One Fights Alone!

We Need YOU!

Volunteer to join a committee, the board, work an event, create an event…we have lots of opportunities! Let us know what you like to do!

Step Forward with your Time & Talents to Fight NF!

NF Midwest and the neurofibromatosis cause needs you!

We Have a Volunteer Opportunity to Match Your Interests and Skills…

  • Looking for a fun team-building event for your co-workers? Form teams for Great Steps or sponsor an office fundraiser that brings everyone into the action!
  • Do you like to raise money for good causes? Offer to recruit corporate sponsors and auction prizes for one of our events.
  • Do you like the adrenaline rush of pulling everything together? Consider pitching in to help organize a local chapter event.
  • Do you have a special talent  or skill such as (but not limited to!) computer networking, accounting, attorney, photographer, writer, singer, juggler? Tell us your talents and we may be able to put you to work for the cause!

Everything you do, big or small, will move the neurofibromatosis cause forward.

People Are Talking

Today I had the chance to get together with a friend that I haven't seen in quite some time, and we managed to talk for three hours about our boys, ages 9 and 12, both with NF1. On my way home, I thought about how blessed I have been and the blessing that has been NF Midwest. My family's lives have been tremendously impacted by the NF Midwest family.  That's truly what they have become to us-family.  Earlier this spring, we had the opportunity to go to the NF Midwest office in St. Charles, IL.  I'm not quite sure what I expected, but there were only three people running this organization that serves NF families in six states! Little did I realize that this visit would lead to the biggest adventure in all of my son 9 years, as he got to go to NF camp in Virginia. Not a day goes by since he came home that camp isn't mentioned. Even more remarkable than that is that those campers’ experiences were made possible by people who just want to make a difference. Making positive differences in the lives of people with NF is ultimately what NF Midwest represents to me. Of course, their contributions to research are extraordinary, and our family has seen first-hand how wonderful camp can be, but I am just as moved when I see a simple message from the staff at NF Midwest offering thoughts and support for someone who is scared and anxious about a test result. The uncertainties of NF can be too much for people to bear and can leave them feeling powerless (yes, I am speaking from personal experience). Our participation in NF Midwest has helped us take some of that power back, and has given us hope.

- NFmom

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