Financials

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

We have loved ones with NF.
Every dollar is as precious to us as it is to you!

NF Midwest is dedicated to improving the lives of people with NF through C.A.R.E.S.

To fulfill this mission, NF Midwest supports regional clinics, raises awareness, funds research, and provides education, and support (C.A.R.E.S.). Our programs and services are designed to help individuals with NF and their families live their best lives while managing the challenges of these conditions.

We meet or exceed the standards set by all groups that monitor the nonprofit sector and are proud of how we ensure donor funds are put to the best possible use in achieving our mission. Check out our status on CANDID (formerly Guidestar) where we’ve earned a GOLD rating.

Our EIN is 22-2580173.

As a nonprofit organization, NF Midwest relies on charitable donations to fund our research programs and patient services. Your support is invested wisely.