• About Us
    • Mission/History
    • Leadership/Staff
    • Financials and FEIN
    • Privacy Policy
  • Shop
  • Contact Us
  • Give
43 Years of Care and Ensuring No One Fights Alone!
Neurofibromatosis Midwest

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

  • What We Do

    “Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine.  We were no longer alone.  They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away.  Trust me when I say my NF is much easier with them in my corner. ”
    -Myshell

    • Clinics
    • Raising Awareness
    • Research
    • Education
    • Support
    • Scholarships
    • Young Adult Leadership
    • Testimonials
  • Get Involved

    “..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
    -Sue

    • Join the Community
    • DIY Events
    • Participate in Research
    • Ways to Give
    • Raising Awareness
    • Walk4NF Events
    • Volunteer
    • Join the Dream Team
    • Share Your Story
    • Join the Board
  • Learn

    “I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
    -Jessica

    • Find A Doctor
    • What is NF?
    • NF Type 1
    • NF2-SWN
    • Other SWN
    • Be iNFormed Database
    • Resources
    • iNFo Fair
    • Faces of NF
    • Research Trials and Studies
  • Events

    “{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate

    • Walk4NF
    • All Events
  • News/Blog

    “Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29

    • Research
    • Education
    • Clinics/Care
    • Events
    • Giving
    • Faces of NF
    • Past Newsletters
    • Behind The Scenes
  • Support
10 events found.

Educational Events

  1. Events
  2. Educational Events

Events Search and Views Navigation

Event Views Navigation

  • List
  • Month
  • Day
  • Photo

Events

Today
  • July 2023

  • Thu 27

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    July 27, 2023 | 6:00 pm - 7:00 pm PDT
    Virtual

    VIEW FLYER           REGISTER

  • August 2023

  • Tue 1

    Walk4NF End of Summer Virtual Challenge

    August 1, 2023 - September 30, 2023
    Virtual

    Take the Walk4NF Challenge. Walk 25/50/100 miles for NF by September 30th. Earn a 2023 Walk4NF T-Shirt and other appreciation...

  • Mon 7

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    August 7, 2023 | 7:00 pm - 8:00 pm EDT
    Virtual

    VIEW FLYER           REGISTER

  • Thu 24

    Free NF1 Plexiform Neurofibroma Educational Virtual Event

    August 24, 2023 | 5:00 pm - 6:00 pm CDT
    Virtual

    VIEW FLYER           REGISTER

  • October 2023

  • Sat 21

    2023 iNFo Fair

    October 21, 2023 | 8:00 am - 4:00 pm CDT

    In-Person Once Again! We're So Much Better Together! A day of education for families and individuals affected by neurofibromatosis, a...

  • March 2024

  • Thu 28

    NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

    March 28, 2024 | 7:00 pm - 8:00 pm CDT

    Gain a new perspective on caring for a child with NF1 PN from this presentation by Regina Zambrano, MD. Learn...

    Free
  • April 2024

  • Thu 25

    NF Midwest Parent Group Chat

    April 25, 2024 | 6:30 pm - 7:30 pm CDT

    Designed for parents with a child of any age with NF, this virtual chat provides a dedicated space for sharing...

    Free
  • May 2024

  • Wed 1

    NF Awareness Event

    May 1, 2024 | 6:00 pm - 8:00 pm CDT
    Harp and Fiddle 110 Main Street, Park Ridge, Illinois

    Join NF Midwest and Children's Tumor Foundation for appetizers and wonderful conversation to celebrate the kickoff to NF Awareness month....

    Free
  • Thu 2

    NF1 PN Educational Event/Living With NF1 PN: How to Be Your Child’s Advocate.

    May 2, 2024 | 6:00 pm - 7:00 pm CDT

    Gain a new perspective on caring for a child with NF1 PN from this presentation. Learn more about NF1 PN,...

    Free
  • Thu 9

    NF1 PN Educational Event/All about NF1, PN, and a treatment option.

    May 9, 2024 | 6:00 pm - 7:00 pm CDT

    Learn about Koselugo and the results seen in children with NF1 PN. Gain access to support programs to help you...

    Free
  • Previous Events
  • Today
  • Next Events
  • Google Calendar
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Export .ics file
  • Export Outlook .ics file

Get the Latest NF News & Updates

Sign up to be notified of new posts to our website.

Sign Up for Updates
  • About NF Midwest
    • Mission/History
    • Leadership/Staff
    • Financials
    • Privacy Policy
  • Ways to Help
    • Donate
    • NF Midwest Walks4NF
    • Ways to Give
    • Shop
  • News/Blog
  • Past Newsletters
  • Email for Support
  • Join the Community
  • Participate in Research
  • Raising Awareness
  • Volunteer
  • What is NF?
  • NF Type 1
  • NF2-Related Schwannomatosis
  • Schwannomatosis
  • Be iNFormed Database
  • Research Trials and Studies
  • Resources
  • Resource Submission
High Impact Research Match Great Non Profits Badge Candid Gold Seal of Transparency 2025 Community Health Charities Combined Federal Campaign NF Collective Member
Donate

© 2026 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

fb-share-icon
Visit Us
Follow Me
Tweet
Share