43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

« All Events

SamJam Finale!

Name: SamJam Finale!
Start: 2025-04-26T17:00:00-05:00
End: 2025-04-26T23:00:00-05:00
Location: The Rustic Venues

April 26 | 5:00 pm – 11:00 pm CDT

SamJam Benefit Concert Aims to Reach $100,000 Milestone for NF Research

Date: Saturday, April 26, 2025
Time: 5:30 PM – Late
Location: The Rustic Venues – Girard, IL

Join us for the 10th annual SamJam benefit concert! Having raised over $90,000 in its first nine editions for NF Midwest, Inc., this year’s event aims to break the $100,000 mark. All proceeds support vital research grants and support services for those affected by neurofibromatosis in Illinois and five surrounding states.

Event Highlights:

Delicious BBQ Dinner featuring smoked brisket and pulled pork with all the trimmings
Full Cash Bar
Silent Auction & 50/50 Raffle
Caribbean Cruise Giveaway (one entry per adult ticket, additional entries available for purchase)

Featured Performers:

ClusterPluck (5:30 PM)
This southern Illinois four-piece returns after successful shows in 2015, 2016, and 2019. They blend bluegrass, folk, rock, jam, and country. The band features a unique instrumental mix with four-part harmonies. They’ve toured the US and Canada since 2010. Past collaborations include Grammy winners Sam Bush and Del McCoury.

The HillBenders (8:00 PM)
This Springfield, Missouri band headlines with their “bluegrass meets rock n’ roll” sound. They’re known for high-energy shows and humor. The HillBenders have toured globally. Rock legend Pete Townshend of The Who has praised their work.

“We aim to push past the $100,000 mark this year,” says organizer Peter Oswald. “Our community has been amazing. We hope everyone will help us again.”

Enjoy great music while supporting an important cause!