42 Years of Care and Ensuring No One Fights Alone!

NF Midwest Care Impact Grants provide up to $10,000 (though they are generally $3,000 to $5,000) to individuals or organizations for a program or project that directly impacts and improves the care of adults and children with neurofibromatosis or schwannomatosis in NF Midwest’s region of Illinois,
Indiana, Iowa, Kentucky, Wisconsin, or Missouri.

The Care Impact Grant program reflects NF Midwest’s commitment to help people with NF live full and productive lives and ensure that No one Fights alone with NF. The work of physicians, clinics, and social workers is vital to this work. We know that they, and other members of our community, may have ideas about new and important ways to serve the NF communities. A Care Impact Grant can help make that happen.

The NF Midwest Care Impact Grant program seeks to fund projects that will make a tangible difference
in the lives of people with NF. Grant applications must meet program requirements and will be selected
through a review process. This program is supported by the proceeds of our Walk4NF events and
generous individual donors.

PROPOSAL REQUIREMENTS
To be considered for funding, the program or project should meet the following requirements:

  1. Contribute to the mission of NF Midwest which is to improve the lives of adults and children with
    neurofibromatosis through C.A.R.E.S. (Clinics, Awareness, Research, Education, and Support)
    and specifically to improve care or access to care.
  2. Benefit individuals in the NF Midwest region or an underserved segment of our NF Midwest
    community and demonstrate real and identifiable change.
  3. Be achievable within a year of granting.
  4. Improve care or include active and ongoing involvement of people with NF or family members
    who will benefit from the program or project.
  5. Have a description and general understanding of the processes and resources
    needed to implement and disseminate the program/project.
  6. Be an original idea or an ongoing program/project that has a measurable impact on the NF
    community.
  7. Must not be dedicated to clinical or basic research, be used solely to purchase equipment, or be
    used for lobbying and fundraising activities.
  8. Describe processes and resources needed to implement and disseminate the program/project,
    including:
    – Clearly stated and focused aim or aims
    – Specific milestones and measures of success
    – A completed application, a summary covering the requirements above, a detailed budget, budget
    justification and other funding sources.

ELIGIBILITY
Applicants may be NF care institutions, individuals, or from a nonprofit organization. For-profit companies are not eligible to apply.

FUNDING AND REPORTING
The maximum grant amount is $10,000 per year for direct costs only. Programs under $5,000 are preferred. Grant applications are for one year and may be renewed for a second year, however funding for year twp is contingent upon submission and approval of a renewal progress report and available funds.

EXAMPLES OF PROJECTS OR PROGRAMS
Examples of projects that might be funded by a Care Impact Grant include but are not limited to…

FOR MORE INFORMATION
If you have an idea or question, please email NF Midwest at or call 630-945-3562.
You may also provide a good summary of your project/proposal and we can get back to you as to the
likelihood that your proposal may be funded.

SUBMITTING
Please submit your application and completed proposal with the details required above via email to
or via mail to NF Midwest, 473 Dunham Rd, Suite 3, St. Charles, IL 60174.

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