43 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

May 7th Walk4NF Columbia

Was a sunny spring day!

Walk4NF Columbia 2022

Posted By NF Midwest | On August 25th, 2022

What a wonderful morning in Columbia, Missouri! On May 7th, a sunny spring Saturday, we gathered for the 3rd Walk4NF Columbia. Christina and Kristi have done such an incredible job growing this walk. Each year has doubled the previous. They always work hard, spread awareness everywhere they go (ask Christina about her license plate!), and have big dreams for next year’s event! Thank you Christina and Kristi for all you do!

Top Fundraising Team in Columbia is E Hulksters!

Some of the NF Fighters on the walk route

Families and friends from all over central Missouri gathered to share in fun and community.

Thanks to all who came out! Can’t wait to see you next year Columbia

Columbia’s Top Teams

E’s Hulksters $10,304

Super E’s $2,105

NF Fighters $820

Columbia’s Walk4NF raised $16,654!

Indianapolis’s Walk4NF is coming up on September 3rd, if you are in the area we would love to have you! Walk 4 NF Indianapolis, IN 2022 (rallybound.org) for registration information.

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