42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Virtual iNFo Fair 2021

Saturday, November 13th

Presented by NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation

Virtual iNFo Fair 2021

Posted By Diana Haberkamp | On November 2nd, 2021

NF Midwest, NF Northeast, Texas NF, and The Littlest Tumor Foundation have collaborated to present a virtual day of learning for the NF patient community on Saturday, November 13th. It will be preceded by a National Social on Friday night, November 12th.

We’ve put together great speakers and topics around NF Type 1 and NF Type 2 and will be planning a separate schwannomatosis event for early 2022.

The schedule and topics, plus registration for both events can be found at www.nf-info.org.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

Virtual iNFo Fair 2021

Virtual iNFo Fair 2021

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