Topics are  NOT IN ORDER of the actual schedule and may be subject to change. There will also be opportunities that aren’t listed here for meeting and talking with others.

• NEW NF1, NF2 AND SCHWANNOMATOSIS DIAGNOSTIC CRITERIA – Robert Listernick, MD, Lurie Children’s Hospital and NF Clinic, Chicago, IL
  
• ENCOURAGING SOCIAL CONNECTIONS AND ADAPTIVE BEHAVIORS. HOW PARENTS CAN HELP! Sandra Cushner-Weinstein LICSW, director of Brainy Camps and Camp New Friends, and a social worker from the Children’s National Medical Center in Washington, DC 
• GENE THERAPY/GENE EDITING – Robert Kesterson, PhD, University of Alabama, Department of Genetics
• NF1 TOPIC: CUTANEOUS NEUROFIBROMAS
  • Genetics and Biology of Cutaneous Neurofibromas – Matt Steensma, MD, Spectrum Health, Francis S Collins Scholar
  • Natural History of and Drug Treatments of Cutaneous Neurofibromas– Ashley Cannon, PhD, MS, CGC, University of Alabama
  • Surgical Management of Cutaneous Neurofibroma: Current Therapy and Future Directions – Lu Le, MD PhD,  University of Texas Southwestern Medical Center
  • Research Update: Photodynamic Therapy on Cutaneous Neurofibromas—Marsha Malloy, RN, BSN, MBA, Medical College of Wisconsin
• REGIONAL CLINIC INFO AND TRIALS UPDATES
• NF1 TOPIC: OPTIC GLIOMAS/RESEARCH AND TREATMENT UPDATE – Robert Listernick, MD, Lurie Children’s Hospital and NF Clinic, Chicago, IL
• NF 2 TOPIC: HEARING REHABILITATION IN NF2 – Auditory Brainstem and Cochlear Implantation – Kevin Peng, MD, Otologist/Neurotologist, House Clinic. Los Angeles, CA
• NF 2 TOPIC: DISCOVERIES FROM SYNODOS FOR NF2 and Identification of Natural Compounds to Treat NF1 and NF2 Tumors  – Long-Sheng Chang, PhD, Professor, Abigail Wexner Research Institute at Nationwide Children’s Hospital and The Ohio State University College of Medicine
• NF 2 TOPIC: NF2 BIOSOLUTIONS – Accelerating Gene Therapy Research for Neurofibromatosis Type 2 – John Manth, Board Member