Scheduled Presentations
Topics are NOT IN ORDER of the actual schedule and may be subject to change. There will also be opportunities…
Topics are NOT IN ORDER of the actual schedule and may be subject to change. There will also be opportunities…
Contact NF Midwest or check out our guidelines and submit the Fundraiser Proposal Form. Once the agreement is signed and…
We have lots of ideas on ways that you can help raise funds and awareness for your NF Midwest. You…
NF Midwest is funded almost entirely by donations. In order to improve the lives of adults and children who have…
A DIY (Do It Your Way) fundraiser is when a business, organization, community group, school or individual hosts an event…
Because so little is currently understood about schwannomatosis, it is difficult to determine the prognosis for people who are affected….
There is no one treatment course that is right for everyone with schwannomatosis, and as of yet there are no…
The genetics of schwannomatosis are not yet clearly understood so it can be difficult in some families to determine who…
Genetic testing for the INI1 gene is available and can be coordinated for families in which testing would be appropriate….
The diagnosis of schwannomatosis is made on the basis of clinical findings. Individuals are considered to have definite schwannomatosis if…
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.