Two Great Stories For Neurofibromatosis - Neurofibromatosis Midwest

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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Two Great Stories For Neurofibromatosis

Posted By NF Midwest | On August 28th, 2013

Raising awareness and funds is not only a year long, but life long battle. There are a lot of people who open their lives to share their stories about neurofibromatosis in order to do this.

Two such people have created pages on our Firstgiving site that we’d like to share now. Their stories are both great examples of the patience and strength it takes to raise awareness and funds.

Dena Regalado will be running in the Chicago Marathon for neurofibromatosis and NF Midwest. Read more of Dena’s story on her fundraising page.

NF Midwest still has coveted spots available for our inaugural Naperville Marathon! So if you or anyone you know would like to run, sign up! The marathon takes place November 10, 2013 at the North Central College Athletic Complex.

Myshell Reith has already started raising funds and awareness for a NF walk that takes place in Chippewa Falls, WI on May 17, 2014. It is never too early! You can read more about Myshell and her fight at her fundraising page.

Are you willing to Do It 4NF and share your story to raise funds and awareness?

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