My NF Guide Study
Massachusetts's General Hospital | 2024
If you or your child has NF1, and you don’t go to an NF Clinic Network Clinic (NFCN) or have…
View ArticleMassachusetts's General Hospital | 2024
If you or your child has NF1, and you don’t go to an NF Clinic Network Clinic (NFCN) or have…
View ArticleStanford Ophthalmology, Children's hospital of Philadelphia and Gilbert Family Foundation | 2024
This study is seeking to learn how different eye tests and devices can help understand vision in patients with NF1,…
View ArticleDana-Farber/Boston Children's | 2024
The Neurofibromatosis Type 1 Tumor Early Detection (NF1-TED) study will determine whether a blood test can detect malignant peripheral nerve…
View Article
Mass General Brigham | 2023
We want to learn more about your experiences looking for NF1 medical information and healthcare. We will use this information…
View Article
University of Wisconsin-Milwaukee
| 2023
By Dr. Bonnie Klein-Tasman
NFlection Therapeutics | 2023
Download Article
Ann & Robert H. Luries Childrens Hospital of Chicago
| 2023
By Carlos Prada, MD
Recruiting NF1 individuals with known Plexiform Neurofibromas
View Article
John Hopkins Medicine
| 2023
By Carlos Romo, MD
Children and teens 19 years and younger.Adults 40 years and over.
View Article
Massachusetts General Hospital/Harvard
| 2022
By Julie Brewer
University of Wisconsin-Milwaukee
| 2021
By Bonnie Klein-Tasman, PhD
© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
.png)
