Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

TeeUp4NF TopGolf

Posted By NF Midwest | On March 3rd, 2020

We could have not had a more perfect day for our TeeUp4NF event at TopGolf Naperville! We had 150 attendees, which is almost a full level, so you can bet we are going to aim to fill that baby next year! We had so many awesome raffle baskets and prizes, a hoppin’ 50/50 raffle, yum-town buffet lunch, and of course- fun and awareness all around!

A HUGE thank you to our amazing sponsors Kolnicki, Peterson, and Wirth, LLC and University of Chicago Medicine Comer Children’s Hospital .

Thank you so much to everyone who came out to play and support our youth and young adult programs such as camp tuition, scholarships, and the Young Adult Leaders. Because of you we are raised…

$11, 177!!!

You are all incredible! Thank you, thank you!