42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Two Special NF Power Hours

On SSDI (disability), Medicaid, Medicare, and More!

NF Power Hours on SSDI, Medicaid, Medicare, and More!

Posted By NF Midwest | On January 15th, 2021

NF Midwest, NF Northeast, and Texas NF are excited to bring two special NF Power Hours to their NF communities. These are two online iNFo sessions about a week a part and presented by professionals from the Legal Council for Health Justice.

The first will be Tuesday, January 26th at 7:00 PM (CST) and will discuss Supplemental Security Income (SSI), Social Security Disability Insurance (SSDI), ABLE Savings accounts for people with disabilities, and special needs trust. Attorney Ellyce Anapolsky will present an overview and then take questions. Please register at www.bitly.com/nf-ssdi.

The second session will be Wednesday, February 3rd at 7:00 PM (CST) and will discuss Medicare, Medicaid, insurance, and other assistance programs. This will be presented by Marina Kurakin a legal advocate and health insurance specialist followed by time for questions. Please register at www.bitly.com/nfinsurance.

Whether you are using these programs now or believe you have no need for this information, it’s very helpful to be iNFormed BEFORE it becomes a need.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.