Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Run 4NF 2012 Runners

Posted By NF Midwest | On May 4th, 2012

NF Midwest is proud to have a group of energetic members that are
running for the NF cause. Help our dedicated runners reach their goals in
upcoming marathons by going to their pages, donating to their effort and
sending them notes of appreciation. Each of them has been training hard
and raising donations to help conquer NF!
Andrea Miller is running the Chicago Rock N Roll Half Marathon on July
22nd.

Simon Camaj, Nikki Jendras and Katie Sullivan are all running in the Bank
of America Chicago Marathon.

Simon Camaj’s Fundraising Page

Nikki Jendras’ Fundraising Page

Michael Blaha is running 12 marathons or half marathons in 12 months. This includes the Chicago Marathon.

Michael’s Blogspot

MICHAEL’S FUNDRAISING PAGE