Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Ready Set Go FOR IT – North Shore Century Ride

Posted By NF Midwest | On July 22nd, 2024

Dust off your rising helmet and join us as we team up with the Children’s Tumor Foundation to raise funds and awareness at the North Shore Century Ride on September 15th, 2024. The ride starts in Evanston IL and travels through part of Chicagoland and parts of Lake Michigan. Not interested in a long ride? That’s okay! The North Shore Century Ride offers various routes at distances of 25, 50, 62, or 100 miles. There will be plenty of excitement, food, and community.

Sign up to join the NF Midwest Team and THEN for the ride. Use the code CTFNSC to receive a 10% discount on the registration fee of $40 (this goes up if you register after September 2nd). However, the number of riders is capped at 2,400 so spots could be gone soon!

JOIN US IN MAKING A DIFFERENCE!