Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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October 2018 Symposium Transcript – Neuromuscular Retraining for Facial Paralysis

Posted By NF Midwest | On February 27th, 2019

At the October 2018 NF Midwest Symposium and iNFo Fair, Jackie Diels, OT, a leading authority on facial neuromuscular retraining (NMR), presented to our neurofibromatosis type 2 community. Ms. Diels discussed this non-surgical therapeutic approach to the treatment of facial paralysis, paresis, and synkinesis. This presentation provided an understanding of how the facial nerves and muscles work and discussed retraining techniques specifically developed to enhance function and improve facial expression after paralysis.

NF Midwest now has the transcript from this discussion available online. Please note that it is a transcript which can be little “rough” at times.

For more information on Jackie Diels and Facial Retrainings go to www.facialretraining.com.

Read the Transcript