Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

NF1 – A Deeper Overview

Posted By Diana Haberkamp | On December 14th, 2017

Just in case you missed our NF Midwest Symposium and iNFo Fair in November (even if you didn’t and just want a review) we’ve posted slides from Dr. Moertel’s excellent presentation that provided a deeper overview on Neurofibromatosis Type 1. For now, we’ve posted these slides as a PDF on the new NF Patient Portal on Genefo.

This is a more in-depth overview that includes some great information and photos!

Even if you think you know everything about NF-1, we think you’ll find something new – so you will want to check it out! The slides aren’t quite as informative without the narration, but as a bonus, if you have a question Dr. Moertel will try to stop by the patient portal to answer it. If not, we have others that can do so.

Sign-up and Check Out the Slides