NF Midwest Family Shares Their Amazing NF Story
When we learned from Jamie Dornbush how many, including her, in her extended family were recently found to have neurofibromatosis type 2 and saw the surgeries that several of them were facing together…we encouraged them to reach out and share their story.
It has been a very difficult year for Jamie and the Barrette family and that sharing was a hard process to add during this time. But they did it 4NF because they wanted to bring awareness to a disorder that unknown to them, had been quietly devastating their world.
Please read and share their story.
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