Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

NF Family Wellness Retreat in Wisconsin

Posted By Karissa Haberkamp | On June 20th, 2017

The Littlest Tumor Foundation is hosting a NF Family Wellness Retreat on August 11-14, 2017 in Clintonville, WI.

According to the Program Coordinator, the mission for the retreat “is to promote healthy living, build compassion, address NF manifestations through different exercises and strengthen the family unit. The retreat provides the opportunity for families to take much needed respite from the stress of everyday life with NF and engage in activities and relaxation that feed their bodies and minds.”

Past retreats have been very successful but this year they are hope to bring in some new NF families!

Please see the flyer and LTF Retreat Registration Form (Full) for more details, and information about signing up! This will be a great opportunity for the entire family!

If you have any questions please direct them to or (920)475-6599.

Retreat Flyer

REGISTRATION FORM