Neurofibromatosis Champions Challenge - Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Neurofibromatosis Champions Challenge

Posted By NF Midwest | On October 18th, 2013

We wrote this week about all the ways NF Champions can forward neurofibromatosis through public speaking, media connections, local events and the internet. Now we hope that everyone will think about how they can step up and be an NF Champion to raise awareness and funds for research and programs of education and care.

We challenge you to DoIt4NF. “It” can be anything…an event to raise funds and awareness, speaking to a group, finding a corporate sponsor, connecting with someone of influence or spreading the word to your social network.

One easy challenge is to come up with a message about NF and how it affects you or the change you want to see. We can all then take this message and share it to spread the word. Create an Instagram video or one of those crazy 6 second Vines and we will all share it with the world. If you have enough space on your creation it is especially important to let people know that they can get more information at www.nfmidwest.org and that they can donate there as well. A “like” doesn’t help the cause.

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