Natural History Study of Cutaneous Neurofibromas in People with NF1

John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also known as cNF. Cutaneous neurofibromas are tumor like growths that can be painful, itchy and bothersome to those who have them. Many with NF1 will develop at least one growth and very little is known about how or why they develop. This study will allow doctors to study how cNF develop, grow and change over time. This information can lead to break through treatments that could possibly provide ways to prevent and treat cNF in the future. If you would like more information or would like to be part of this study, please click on the links below.