My NF Study Guide

If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past 12 months, you may qualify to participate in an important research study. This study focuses on improving the quality of care that NF1 patients receive during annual check-ups or well-child visits. Your participation could help shape better care for the NF1 community.

The research is testing two interventions to provide NF1-specific recommendations during your annual physical exam or well-child visit. It involves two online surveys and an optional interview. You may earn up to $150 for participating.

If you’re interested, fill out the pre-screening survey to get started!