Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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NF Midwest Groups DoIt4NF!

Posted By NF Midwest | On January 31st, 2013

Chapters are forming throughout the Midwest to DoIt4NF.

On Monday, January 28th the Evansville chapter held a fun productive meeting and made plans to pass out water and share information about neurofibromatosis at the Southern Indiana Classic Marathon. They also discussed the possibility of an NF Family Event and a fundraiser for NF.

The Central Missouri chapter, formerly known as the Columbia chapter, also had a meeting on January 18th in Jefferson City, MO and has plans to meet the third Thursday of every month.

Participating in a NF Midwest chapter is a great way to make a difference in the neurofibromatosis cause on the ground where it really counts. We have several fledgling chapters. Please let us know if you’d like more information on one or would like to help start one in your area.

More Info.