Meet the Faces of NF Care - Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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Meet the Faces of NF Care

Posted By NF Midwest | On July 29th, 2024

Have you seen our new video series called Meet the Faces of NF Care? This series is designed to give you, the NF community, a chance to learn more about NF care and the dedicated providers in your area (Illinois, Indiana, Iowa, Kentucky, Wisconsin, and Missouri).

Through these informative recordings, you’ll gain valuable insights, including:

The people behind the scenes: Meet the healthcare professionals who are committed to your well-being.
Your first appointment: Learn what to expect during your initial visit with an NF specialist.
Your medical team: Understand the roles of each healthcare professional involved in your care.
Answers to your questions: Get expert answers to questions submitted directly by NF Midwest members like you!

Whether you’re newly diagnosed or have been living with NF for a long time, Meet the Faces of NF Care is a fantastic resource for anyone seeking information and support in their journey with NF.

Haven’t seen a recording from your area yet? Don’t worry! New recordings are being added as they’re completed, so stay tuned.

Ready to watch? Head over to the NF Midwest YouTube channel: Faces of NF Care Intro (youtube.com)

If you would like to submit a question for our next recording, please us here.

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