Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Watch Libby on The Doctors!

Posted By NF Midwest | On January 15th, 2018

NF Midwest member, Libby, did an amazing job in her third appearance on The Doctors television show and her reveal was very moving!

We want to thank Libby for putting the work into this and for putting her face and story out there for the world. She is advancing NF awareness for the NF Community! We’re so fortunate to have Libby in the NF Midwest community, working for the cause, and helping those with neurofibromatosis everywhere!

We think that some areas, like Chicago, might be an episode behind on The Doctors so they didn’t show Libby’s episode but it may be on Tuesday the 16th. Otherwise, we have the episode in two-parts below and links to the past episodes further down on the page.

Video: My Entire Body is Covered in Tumors

Video: Living Covered in Tumors

Video: Women Covered in Tumors Returns