Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Kentucky family hosts NF Family Picnic

Posted By Kentucky NF Midwest | On July 6th, 2017

On Saturday, June 24, 2017, Kentucky residents had a fun filled day, courtesy of Freddy and Camillia Thomas, Jr., of Thomas Farm in Elizabethtown, KY, for NF patients and their families. The Thomas’ have a 16 year old son, Kyler, that has NF1.

While the adults were able to sit and enjoy talking with one another, the kids spent the day having loads of fun! The kids were treated to water games, horseback riding, yard games, and making new friends.

The guest of honor was Dr. Donita Lightner, neurologist at University of Kentucky. Dr. Lightner was available for patients and their families to ask questions and to get to know her in an informal setting.

The Thomas family wishes to thank NF Midwest, University of KY NF support group, Dr. Donita Lightner, the Stratton family, and all the NF families who participated.

See More Photos